Tuesday, July 22, 2014

Ob-la-di, Ob-la-da

Lately, I haven't had much to say. Post-transplant life was not turning out like I expected and its bumps and dips were leaving a bad taste in my mouth. Life went on.

Last week, a traumatic post-transplant dip/valley/planet-sized crater happened. I went from feeling "pretty ok" to barely capable of sitting up or speaking, in gross amounts of pain and bone-chillingly cold in a few hours.

It turns out I had a kidney infection, which quickly progressed to sepsis and took over my body. I was admitted, my fever subsided within a day, but the nausea, vomiting, pain, and general inability to function persisted a few days, until I got transferred from the local hospital to my "transplant team" hospital.

At the local hospital, my immunosuppressant level was overlooked when they treated my new infections with antibiotics. The local doctors,not well-versed in transplant medicine, conitnued my immunosuppressant medication, and the level skyrocketed to beyond toxic levels, essentially overdosing me on prograf. (For fellow transplant folks, my prograf level was 54, and ) I felt physically the worst I have felt in my life. My head was splitting, I couldn’t stand light or noise, my body ached, I was nauseated and exhausted, unable to sleep and desperately dependent upon IV-infused dialudid(synthesized morphine that's 7.5 times more potent than morphine) that never seemed to be enough or on time.

I was given activated charcoal to drink to de-poison my system, but, like the sips of water I hadn't been able to keep down for the previous two days, the charcoal didn't stay down. As bad as it tasted going down, it was further painful and horrible tasting having it all come back up--only it took all day to get rid of it rather than the half hour it took to drink it. The doctors ultimately decided the only option was to flush me “manually” with saline and lasix.

Those days of detoxing are really a gray area in my memory.  Everything was too bright and too loud, a jarbled mess of pain and vomiting and sweating and dilaudid. There's big gaps of missing time and endless hours of no sleep. I lost control of my body and its functions, getting out of bed was traumatic and dizzying, staying in it was endless achiness and repeated hallucinating.

After a couple painstaking days of forced detox, my body began to regain its ability to function. I could carry on somewhat meaningful conversations and keep my head outside the covers. My dilaudid demands slowed and my hallucinations stopped. I enjoyed a heavenly breakfast on my day of discharge; chicken broth and jello never tasted so good. In fact, the last 6 hours of my hospital stay felt like as quick a turn in the positive direction as the original onset was in the negative.
 

So, right now, in my post-valley peak, I am grateful and renewed and amazed and delighted at my good health, the world and my blessed presence in it. The sun is brighter  than when I went in. Early mornings are sweeter and late nights are savory-er. I don’t want this appreciation to go away.

As before, life goes on.
It just tastes better now.

2 comments:

  1. OMG! It's endless and you come up to bat and hit the home run every time! So proud of you Michelle (and you medical team).

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  2. Hi again Michelle,

    Damn you are so getting the short end of things! I hope incidents slow down for a while, you need a break. 47 just scares me, that is way too high. In the meantime thanks for writing and being you.

    - Corwin

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