Welcome to my blog. When I was first diagnosed with kidney failure and learned I could qualify for a kidney
and pancreas transplant, I scoured the internet for information and didn't come up with much. This is a big step
for me; I'm pretty reserved naturally and most people who know me are not aware of my medical conditions.
So, here's my experience…read, follow, comment, share…support me in turning over this new leaf.

(If this is your first visit and you'd like to read the events in order, click here to start at the beginning.)
Showing posts with label donor. Show all posts
Showing posts with label donor. Show all posts

Wednesday, April 24, 2013

The Kidney Walk Looking Glass


Yay! On Sunday, we complete our first National Kidney Foundation's Kidney Walk. I proudly wear my "RECIPIENT" label. Impressed by their presence and above-and-beyond generosity, I am amazed at the high number of people tagged "HERO" and "DONOR." I'm especially awe-struck by the folks labelled "DONOR FAMILY," the term typically associated with the family of a deceased donor. 

Theres a local radio station(99.5) sponsoring the walk. After a few songs, the dj hands the mic over to a NKF rep, who starts with "Raise your hand if you have 2 kidneys..."  The bulk of the crowd's hands go up. 

"Raise your hand if you have 3 kidneys..." A splattering of us raise our hands, and the rep pauses and scopes the crowd, his eyes briefly settling on me and my outstretched arm. I feel the eyes of other humans(not numbers like 26 million Americans waiting on recipient list, but real, touchable, concrete I-could-reach-out-and- hug-them humans) in need, people who want to be in my place. Their stares burn a little with a bittersweet combination of envy, hope and inspiration.

The rep interrupts my self-consciousness with a booming "Now, raise your hand if you have 1 kidney!" And all of us possessing multiple kidneys applaud with genuine, whole-hearted appreciation. 

I expect the kidney walk to be positive and meaningful; I am not prepared for the overwhelming rush of heart-tugging emotion that is taking over my typically controlled demeanor.  I wipe away tears and look around wide-eyed at the huge crowd of once complete strangers that has morphed into a big, loud and engaging family bonding at a family reunion.

We stroll around the pavilion, checking out the kids' activities and people watching. I notice all the different team shirts and find myself pulling for each one. I want Little Logan's Dream Team to find a match for Logan, the cutest little red-head who clearly just started walking. He parts the crowd like Moses and the Red Sea, steadily advancing while pushing a folding chair as he toddles along. 

I sincerely hope that Mama Castro gets her transplant soon. Team Infinity looks like they're having a blast with tons of teenagers and their fun, tie-dye shirts. Spiderman & His Amazing Friends have a bunch of kids with them; I'm guessing whoever needs the help is surrounded with love from this motley crew. I wonder about all the other people waiting for kidneys, the ones who don't have a huge team to support them, the ones who are not a visible presence here at the walk. 

So... In very Alice-in-Wonderland fashion, I've been changed by my journey. I hope everyone will take this into account when reading my next few lines...
  • If you donated to our team, THANK YOU for being so generous and willing to help anonymous strangers in need.
  • If you read my blog, THANK YOU for sharing my experience and supporting me as I grow.
  • If you're already part of my support system, THANK YOU for letting me lean on you, for encouraging me when things feel bleak and for being exactly who you are.
  • If you'd like to do more, please consider donating your organs, eyes and tissue so that you can live on by helping one of my family members I haven't been lucky enough to meet yet.



Click the link to DONATE LIFE and register today!

Tuesday, December 18, 2012

With Thanks, Respect and Love

Dear Donor Family,

It has been over two months since I received from you the most generous gift anyone has ever given me: a kidney and pancreas from your loved one.  As I gather my thoughts and reflect, my mind often wanders to your family, wondering how you are, imagining you recovering from your loss and wishing you strength now and always.  

I wonder about meeting you, I wonder if you would welcome this idea. I wonder how difficult it must be living with the loss of your loved one.  On the day I celebrate my new beginning, I wonder how you are mourning the last day of his life.  I wonder if this letter, filled with my own optimism and gratitude, will cause further grief, knowing that it was the death of your loved one that fueled my new beginning.
  
I hope that in reading how his generous gift has brought about my new beginning, you will find comfort in knowing what a valuable impact your loved one, my hero, has made.

This new beginning is miraculous for me.  My twenty-two year struggle with diabetes and  two-year battle with kidney failure are over. I am no longer plagued by insulin shots, dialysis, high blood pressure, a heart condition, high cholesterol or anemia. My children no longer bear the burden of my limitations. 

How do I express my appreciation for the gifts you have given me? How do I thank the family whose grave loss renewed my life? I haven't figured this out yet, and I hope that this letter is a start.  I hope that you find some solace in knowing that our appreciation for your generosity is limitless.  

I know that my new-found life is only possible because of your family's selfless act, a selfless act that unveiled your generous and benevolent spirit even in your darkest hour. I promise you that this selfless act will never be taken for granted.  I look forward to learning more about you and your loved one, celebrating his life and honoring his memory. I promise to carry him with me, to take good care of him and to honor him with everything I do.

Please accept our deepest sympathies and our sincerest gratitude.                       

With thanks, respect and love,   
Michelle, Gabriella and Campbell