Welcome to my blog. When I was first diagnosed with kidney failure and learned I could qualify for a kidney
and pancreas transplant, I scoured the internet for information and didn't come up with much. This is a big step
for me; I'm pretty reserved naturally and most people who know me are not aware of my medical conditions.
So, here's my experience…read, follow, comment, share…support me in turning over this new leaf.

(If this is your first visit and you'd like to read the events in order, click here to start at the beginning.)

Saturday, February 16, 2013

Pros, Cons & Opportunities for Strength

Dr Wali came to see me this morning with reasonably good news:
Before steroid

  • I will not need a biopsy
  • Graft rejection has been confirmed by improved kidney function and improved Prograf level after one treatment of rejection-attacking Solu-Medrol/steroid
  • I will need a total of 3 Solu-Medrol/steroid treatments(final one tomorrow) to treat existing rejection
  • Cell cept(drug causing decrease in WBC via bone marrow suppression) is still necessary, but will be dosed at half of my current dosage
  • Bactrim(antibiotic that can also decrease WBC) has been replaced by another antibiotic
  • Finally: plan is to go home on Sunday after 3rd treatment!

After steroid
I will need to be continuously monitored for bone marrow suppression. The replacement antibiotic is liquid only and tastes like the nasty orange medicine my mom used to give me as a kid. My prednisone steroid treatment will be increased again and this means moon face swelling and weight gain.

I am concerned that monitoring of my lab results was getting spaced out further than I am comfortable with. I will discuss my transplant team keeping closer tabs on my lab work. I understand there are plenty of red flags to look for on my lab work and I can be especially demanding if the situation calls for it.

All in all, a good outcome. :)
Pros definitely outweigh the cons, and everything is completely doable. I'm up for the future.

Another opportunity to be, as my blog title implies, Strong Like Water.

No comments:

Post a Comment