So, at home, sleeping(trying to sleep) in my bed is much better than the hospital. I can turn off ALL the lights and don't have to worry about a lab tech or friendly nurse or X-ray tech or inquisitive med student dropping by every couple of hours. I am also able to get up and walk without dragging the IV pole around. Ah, simple pleasures....
There's still plenty of pain. I take pain medication pretty religiously because my body lets me know if I missed it...I don't have to rely on a clock to know when it's been more than 4 hours.
My incision starts bleeding, more than I would expect. It soaks through my shirt and pants. It doesn't hurt more, but it is alarming. With nurse's direction, I apply a dressing and realize I'm a lot more gentle than any of the techs, nurse, and especially doctors were.
I do a lot of walking up and down the stairs. When I can't sleep, this gets me tired enough to fall asleep. I use a heating pad on my back which is especially helpful. I still can't really eat very much, and I am especially nauseated. In the first 2 days at home, in total I ate about 2 servings of soup and drank some water, all of it was forced. And I threw up most of it. By the second day, I couldn't hold down sips of water. I called the nurse. She told me I needed to return to the hospital; I was dehydrated.
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